ethics-guideline participatory-or-community-research research-ethics
“One of the main aims of producing this guide is to enhance the awareness of ethical challenges on the part of research partners and their ability to tackle these challenges. Another aim is to encourage research funders, academic and other institutions and research ethics committees to understand the complexities of CBPR and modify some of their existing requirements to fit CBPR contexts. Taking account of the nuances and complexities of CBPR may require institutions to change their ways of working and reconsider their values. The ethical principles underpinning CBPR emphasise democratic participation in the research process. This means it is important that these principles are made explicit, in order to ensure all participants are aware of them, and able to discuss what they mean in their own contexts and work together to interpret, develop and implement them. In summary, the guide to ethical principles and practice has a number of purposes, including to:
raise ethical awareness amongst all research partners and participants
encourage discussion about ethical issues that can arise in CBPR
offer ethical guidance to partners and participants in CBPR” (Centre for Social Justice and Community Action and National Co-ordinating Centre for Public Engagement, 2012, p. 6)“
inform research institutions (including universities), research funders and sponsors about what ethical issues might come up so they can ensure CBPR is conducted according to the highest standards
inform research institutions, research funders and sponsors about the complexities and nuances of CBPR to ensure they do not impose ethical standards that are impractical, patronising to community researchers or partners or inappropriate in other ways
improve ethical practice in CBPR The ethical principles and guidelines are designed not to be too detailed or prescriptive (i.e. they do not take the form of rules) as this removes control and responsibility from the research partners themselves and assumes a fixed model of what counts as good research. The ethical principles and guidelines cannot offer simple solutions to the inevitable dilemmas and challenges that are part of the CBPR process.” (Centre for Social Justice and Community Action and National Co-ordinating Centre for Public Engagement, 2012, p. 7)