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It is not always clear how our data is being used, or how we could find out

AI

It is not always clear what data about is being used, how it is being used, by whom, and to what end. "Issue: What would it mean for a person to have an algorithmic agent helping them actively represent and curate their terms and conditions at all times?While it’s essential to create your own terms and conditions to broadcast your preferences, it’s also important to recognize that humans do not operate at an algorithmic speed or level. A significant part of retaining your agency in this way involves identifying trusted services that can essentially act on your behalf when making decisions about your data. Part of this logic entails putting you “at the center of your data”. One of the greatest challenges to user agency is that once you give your data away, you do not know how it is being used or by whom. But when all transactions about your data go through your A/IS agent honoring your preferences, you have better opportunities to control how your information is shared.As an example, with medical data—while it is assumed most would share all their medical data with their spouse—most would also not wish to share that same amount of data with their local gym. This is an issue that extends beyond privacy, meaning one’s cultural or individual preferences about what personal information to share, to utility and clarity. This type of sharing also benefits users or organizations on the receiving end of data from these exchanges. For instance, the local gym in the previous example may only need basic heart or general health information and would actually not wish to handle or store sensitive cancer or other personal health data for reasons of liability. A precedent for this type of patient- or usercentric model comes from Gliimpse, a service described by Jordan Crook from TechCrunch in his article, “Apple acquired Gliimpse, a personal health data startup”: “Gliimpse works by letting users pull their own medical info into a single virtual space, with the ability to add documents and pictures to fill out the profile. From there, users can share that data (as a comprehensive picture) to whomever they wish.” The fact that Apple acquired the startup points to the potential for the successful business model of user-centric data exchange and putting individuals at the center of their data. A person’s A/IS agent is a proactive algorithmic tool honoring their terms and conditions in the digital, virtual, and physical worlds. Any public space where a user may not be aware they are under surveillance by facial recognition, biometric, or other tools that could track, store, and utilize their data can now provide overt opportunity for consent via an A/IS agent platform. Even where an individual is not sure they are being tracked, by broadcasting their terms and conditions via digital means, they can demonstrate their preferences in the public arena. Via Bluetooth or similar technologies, individuals could offer their terms and conditions in a ubiquitous and always-on manner. This means even when an individual’s terms and conditions are not honored, people would have the ability to demonstrate their desire not to be tracked which could provide a methodology for the democratic right to protest in a peaceful manner. And where those terms and conditions are recognized- meaning technically recognized even if they are not honored-one’s opinions could be formally logged via GPS and timestamp data.The A/IS agent could serve as an educator and negotiator on behalf of its user by suggesting how requested data could be combined with other data that has already been provided, inform the user if data are being used in a way that was not authorized, or make recommendations to the user based on a personal profile. As a negotiator, the agent could broker conditions for sharing data and could include payment to the user as a term, or even retract consent for the use of data previously authorized, for instance, if a breach of conditions was detected."(IEEE, 2019, p.110-112).

Overarching Principles Respect for persons
Principles Privacy
Sources IEEE
Title It is not always clear how our data is being used, or how we could find out